9月2日，北航迎來了第一名2021級本科新生邢益凡。他在父母的陪伴下，提前入住校園愛心宿舍。
圖源：北京航空航天大學(xué)微信公眾號
邢益凡今年18歲，體重卻僅有18公斤。6個月大時，他被確診為LAMA2-相關(guān)先天性肌營養(yǎng)不良（漸凍癥的一種）。
他憑借頑強(qiáng)的意志，常年與病魔作斗爭，在學(xué)習(xí)上創(chuàng)造了一個又一個讓人驚嘆的成績。中考時，邢益凡以全校最高分，考入吉林市第一中學(xué)；今年高考，他又以645分的成績考入北京航空航天大學(xué)。
這，是一場人生的逆襲。
圖源：北京航空航天大學(xué)微信公眾號
Xing Yifan and his parents were thrilled to learn that he had been admitted to Beihang University with a score of 645 out of a possible 750 points in this year's national college entrance examination, or gaokao.
It would take most high school graduates great effort to score that high.
But the challenge for 18-year-old Xing was greater, as he was born with congenital muscular dystrophy, or CMD, a group of disorders characterized by muscle weakness and problems with the eyes and central nervous system.
據(jù)《江城日報》報道，2003年，邢益凡出生在一個普通的工薪家庭。
從出生那一年開始，疾病就始終伴隨著他。邢益凡爸爸媽媽帶孩子輾轉(zhuǎn)省內(nèi)外十多家醫(yī)院檢查，各大醫(yī)院束手無策，只能一次又一次地做肌肉活檢。孩子那撕心裂肺的哭聲，讓邢家人想起來就忍不住落淚。
2004年，輾轉(zhuǎn)多家醫(yī)院、剛6個月大的邢益凡在北大醫(yī)院兒科確診為LAMA2-相關(guān)先天性肌營養(yǎng)不良，這是一種罕見的因LAMA2基因突變導(dǎo)致的先天性肌營養(yǎng)不良亞型。那個年代，醫(yī)生對這個疾病了解很少，更談不上治療，甚至連有針對性的康復(fù)訓(xùn)練都很困難。帶著諸多遺憾，父母只能帶著他回到家鄉(xiāng)。
不少人勸邢家人，趁著年輕再要一個孩子吧。可邢爸爸邢媽媽覺得，邢益凡就是降臨到他們
身邊的天使，雖然他的“翅膀”折斷了，但這不該成為放棄他的理由。他們給邢益凡起了個小名，叫毛毛。希望他像毛毛草一樣，擁有頑強(qiáng)的生命力。
After the Spring Festival in 2004, the Xing couple took him to Beijing for treatment, and he was finally diagnosed with CMD at Peking University First Hospital.
When relatives and friends heard the news, they advised the couple to have another baby, but they were determined to pour all their love and care into their son.
"Yifan is an angel who came to our family," the father said. "He might have broken wings, but we will never give him up."
因?yàn)榛疾?，邢益凡最大運(yùn)動能力只能獨(dú)坐，無法像其他孩子一樣站立、行走。
活著，就已經(jīng)要用盡全力，為什么還要學(xué)習(xí)呢？邢家人的想法很簡單，邢益凡患了這樣嚴(yán)重的疾病，被剝奪了走、跑、跳的權(quán)利，不能再被剝奪受教育的權(quán)利。在心智上，他不該被歧視。不學(xué)習(xí)，他就會成為社會的廢人。
邢益凡并沒有放棄生活，而是選擇了讓自己活得更有價值。學(xué)習(xí)對他來說不是負(fù)擔(dān)，反而是他最大的樂趣。
圖源：吉林一中微信公眾號
由于嚴(yán)重脊柱畸形，邢益凡一堂課最多能堅持坐著聽課30分鐘，剩下15分鐘只能躺著聽課，全靠大腦想象老師講的知識。
The young man's health continued to deteriorate. As a result of his condition, he is unable to grow much muscle, so his skeleton suffers from a lack of support and protection.
"He has never walked independently and can only sit against a support," said Xing Dacheng.
"And every 30 minutes, he has to lie down to rest, even in the classroom."
幸運(yùn)的是，邢益凡從小學(xué)到高中都遇到了非常負(fù)責(zé)任的老師。小學(xué)班主任侯素云老師，6年來每天抱著邢益凡上下樓，沒讓他落下一節(jié)課。
在學(xué)習(xí)上，初中班主任楊衛(wèi)紅沒有給邢益凡特殊待遇，英文書寫不好照樣評“D”。這激發(fā)了他不服氣的性格，“別人能行，我也能行！”經(jīng)過反復(fù)練習(xí)，邢益凡終于獲得了“A”的書寫評價。楊衛(wèi)紅想盡辦法，讓他發(fā)覺自己是個有價值的人。他的學(xué)習(xí)動力一點(diǎn)一點(diǎn)增強(qiáng)，逐漸在學(xué)習(xí)中找到了自信心。
圖源：北京航空航天大學(xué)微信公眾號
當(dāng)年中考，邢益凡以615分的成績考入吉林一中，這個從沒參加過課外補(bǔ)習(xí)的孩子，考出了學(xué)校最好的中考成績。
The condition has also deformed Xing Yifan's spine and fingers, making it difficult for him to write. "His teachers and principals from primary school to senior high school never refused him the opportunity of education and gave us lots of help," his father added.
Hou Suyun, head teacher at Xing Yifan's primary school, carried him up and down stairs during the six years he spent at the school.
Yang Weihong, head teacher at Xing Yifan's junior high school, gave him extra care but subjected him to the same strict academic requirements as his classmates.
"I tried everything I could to stimulate his desire to study, hoping to give him more confidence," Yang said. "I also hoped he would discover his own sense of worth."
Yang's methods worked. Xing Yifan got the highest score in his school for the senior high school entrance examinations in 2018.
備戰(zhàn)高考期間，邢益凡用僅剩一點(diǎn)兒肌肉力量的雙手，他完成了一張又一張試卷，一天最多做了20多張，經(jīng)常做到凌晨一兩點(diǎn)，每天疲倦到沾床就能睡著。
去年九月，邢益凡在準(zhǔn)備上床睡覺時不慎右臂肩關(guān)節(jié)骨折。在3個月的治療中，因長期臥床和嚴(yán)重呼吸功能不全，他出現(xiàn)了墜積性肺炎。
在邢益凡因骨折缺席課堂的那段時間，學(xué)校還在教室里安裝了攝像頭，方便他遠(yuǎn)程聽課。而令所有人意外的是，邢益凡再次重返課堂時，成績不降反升。最終，他如愿參加并順利完成了2021年高考，成績優(yōu)異，645分，并被北京航空航天大學(xué)錄取！
圖源：北京航空航天大學(xué)微信公眾號
To prepare for gaokao, he studied even harder from the day he started at Jilin No 1 Senior High School. "He rarely went to bed before the midnight, especially in the third year," his father said.
In September last year, Xing Yifan suffered a fracture to his right shoulder and had to stay at home to recover.
A camera was set up in his classroom to allow him to follow lessons on his computer at home.
After three months, he returned, and to his teachers' surprise, had improved instead of falling behind his classmates.
今后，邢益凡將住進(jìn)北航準(zhǔn)備的愛心宿舍里，他的媽媽也將在這里照顧他。
談起未來的學(xué)習(xí)和生活，邢益凡說：“聽說大學(xué)生活很豐富，我希望認(rèn)識更多的同學(xué)，也想?yún)⒓迂S富的活動。雖然也會有壓力，但我一直都有心理準(zhǔn)備，其實(shí)一路就是這么過來的。”
圖源：北京航空航天大學(xué)微信公眾號
小時候，邢益凡就有一個“航天夢”：“太空沒重力，我就和別人一樣，可以在太空中自由翱翔。”初中時，他聽說了霍金的故事，立志要做中國的“霍金”，用自己的知識改變世界。
生活以痛吻我
我卻報之以歌
邢益凡，祝福你！加油！
綜合來源：中國青年報 中國日報 北京航空航天大學(xué) 吉林一中 江城日報
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